The New Sleep Setup It’s fair to say that we were a little nervous going into our first follow-up appointment to Greenville Shriners Hospital, after receiving the AFOs 5 weeks ago. Thankfully, Dr. Hyer said…
The Seeds of Doubt
It has been five weeks since we were last at Greenville Shriners Hospital. Five long weeks. To most, having five weeks off from having doctor’s appointments would sound great. Especially when you consider how many…
The Ability Walk
See the Ability, Not the Disability Our local hospital, Rockcastle Regional, held a new event today. One I’m hoping can grow and become a yearly event; The Ability Walk. We had a great (but very…
Our New Holiday – June 30th
I had no idea 15 weeks ago. I did not know what AMC was, or that it had an awareness day. Today we received our package of all our AMC Awareness goodies. T-shirts, wrist bands,…
We’re Three Months into the HG Experience
Today marks 3 months. (So you know I have to do my monthly post!) We are officially a quarter of the way through year 1. I wish I could say it has been an easy…
World Clubfoot Day
Today is World Clubfoot Day which takes place on the birthday of Dr. Ignacio Ponseti, pioneer of the Ponseti method for clubfoot. As previously documented, HG began the Ponseti method when he was 2 weeks…
The Hurdles of Arms & Hands
I’ve probably started and stopped this post a half dozen times already. Well before sharing the blog publicly. It’s just one of those subjects that is not only hard to cover but is so broad,…
The First Waterfall – Anglin Falls
Anglin Falls is a local waterfall, near Mount Vernon, Kentucky, and it is practically criminal that it’s taken us this long to get out there with HG. Well, we finally made the short hike, along…
Marvel Features Young Martial Artist with Arthrogryposis in Hero Project
As a dad raising a child with arthrogryposis, stories like Izzy’s remind me of the power of visibility, and what representation can do for kids like my son. Last year, Disney+ and Marvel teamed up…
The Sweet Milestone of Shots
We have had many milestones with HG in these last 11-plus weeks. First casts, last casts. First splints, first AFOs, and first arms movements. With all those milestones, unique to HG, it’s nice to have…
Pool Time it is!
We’re entering summertime, which means pool time! My brother-in-law recently opened his pool up for the season, and like any good nephew, HG tried it out as soon as he could! Thankfully, HG is proving…
Celebrating Wrinkles
Who knew wrinkles would be such a welcomed sight?! Wrinkles that we all have, that you never think about, like on your elbows, fingers, wrists, and knees, HG has never had. HG has been missing…