Today was one of those days that feels like a turning point. A moment that you know will stick with you — not because it was big and loud, but because it quietly reshaped our…
Rare Disease Day 2024: Raising Awareness, Building Hope
Millions worldwide face the daily challenges of rare diseases, often feeling forgotten and without adequate resources. Tomorrow, on February 29th, 2024, we stand together on Rare Disease Day to raise awareness about these conditions, advocate for better access to…
Behind the Smiles: When Fatherhood Feels Powerless
Something that is rarely talked about, especially by fathers, is how all of this just sucks sometimes. I’m not talking about parenting in general. Nothing like that. But being a parent to a disabled child….
Goal Complete: Shriners Children’s 58-Mile Challenge
I have not been shy about my struggles against the dad bod these past few years. While I have debated sharing a few different things lately regarding my health, including new back issues, and numbness…
Coping with Silence, Missing My Son’s Voice
I miss my son’s voice. When I say that, I don’t mean the baby voice when he started jabbering, or any variation of that. No, I literally mean that I miss his voice. His actual…
Greene Does Greenville – Hall of Fame Induction
What hopefully proves to be our last Greenville trip of 2023 is in the books, with Hall of Fame-worthy aspects sprinkled throughout the two-day visit. Day 1 This visit had been on the books since…
Greene Does Greenville: A Serial Solution
Earlier this week was our latest trip to Greenville, SC, and to Shriners Children’s Greenville. Thankfully, this was a scheduled trip and was not a repeat of our last 12-hour round-trip visit. Thankfully, by using…
The Next Step Forward with an Eye Gaze Device
As parents, we’re conditioned to expect and anticipate certain milestones from our children. We eagerly anticipate their first words, the sweet “mama” and “dada”. Those wobbly first steps towards independence. Harrison has and continues to…
Greene Does Greenville: The Boy Wonder
September has been a busy month, as we just made our third trip to Shriners Children’s Greenville this month. Similar to our last visit, this latest, impromptu visit came with a few firsts. Such as…
Greene Does Greenville: Red Leg Casts
Faster than we might have anticipated, we found ourselves embarking on our 21st journey to Greenville Shriners. The rushed timing, while unexpected, didn’t affect our usual cocktail of stress, determination, and optimism If I were…
Greene Does Greenville: The Next Milestone
Our 20th visit to Shriners Children’s Greenville is in the books. Twenty trips, of varying degrees of stress or relief. Over 11,000 miles, all driven towards the next step, the next milestone. Our 20th trip…
Reflecting on AMC Awareness Day (and Month) 2023
I wrote a post last year, after AMC Awareness Day had passed, reflecting back on it, and comparing it to our first AMC Awareness Day. I actually had full intentions of doing the same this…