A summer afternoon, a swollen lip, and a stinger we didn’t see — not until it had already left its mark. This is a glimpse into what it’s like parenting a non-speaking child when pain can’t be pointed to and comfort feels just out of reach.
Posts tagged Arthrogryposis
Greene Does Greenville – A Step Forward
Another trip to Greenville is in the books. While it wasn’t the busiest or most eventful visit we’ve ever had, Trip 28 still holds its place on the path. In the grand scheme, it might…
Greene Does Greenville – 25 and Counting
So, we’ve completed 25 trips to Greenville—25 round trips, to be exact. Of course, we’ve had countless more doctor’s appointments, but in terms of actual trips, 25 in three years. As we were driving down…
Greene Does Greenville: A Serial Solution
Earlier this week was our latest trip to Greenville, SC, and to Shriners Children’s Greenville. Thankfully, this was a scheduled trip and was not a repeat of our last 12-hour round-trip visit. Thankfully, by using…
Greene Does Greenville: The Next Milestone
Our 20th visit to Shriners Children’s Greenville is in the books. Twenty trips, of varying degrees of stress or relief. Over 11,000 miles, all driven towards the next step, the next milestone. Our 20th trip…
AMC Awareness Day 2023!
Yes, I know; I’m a few days late on this post. AMC Awareness Day was June 30th, and today is July 2nd. What can I say? I’ve been busy! Yes, I could have prewritten a…
Shriners Children’s Lexington Hospital – Strike 3
I am not one to say negative things about a place or people, especially one such as a children’s hospital, but after experiencing the treatment we’ve received at Greenville Shriners and the high bar that…
Greene Does Greenville: Hero in TWO Half Shells
Another 24-hour Greenville there and back trip is in the books. Harrison’s tricky upper curve is giving Dr. Pete a run for his money. We came away with two braces to try out over the…
Greene Does Greenville: The Boy Who Makes No Sense
If someone were to come up and ask me what’s the one lesson I’ve learned in the past two years that rises above all others, my answer would be simple: not to get ahead of…
Harrison Turns 2!
Just like last year, I’ve tried writing a birthday post for Harrison all day. Between work and the stress of making a duck cake (IYKYK), I’ve not really had the time to think, or maybe…
Why I Gave a Cartoon AFOs — And What It Says About Inclusion
Note: This post was originally drafted for Fatherhood Reloaded, but it quickly became clear that it belonged here Meet Greeney Before Harrison’s birthday this year, I opened up Affinity Designer to create something fun —…
Greene Does Greenville – It’s Mehta Time!
It has nearly been 3 months, yet again, since our last visit to Shriners Children’s in Greenville, SC. As always, the number of things that can change in that amount of time can be mind-boggling….