On March 4, we sat in a hospital room in Lexington, our newborn son down in the NICU with countless monitors and tubes. The day’s events had left us speechless. We were scared and had…
Browsing Category Milestones & Reflections
A Late Night Hospital Frame of Mind
So I’m sitting here, in a dark hospital room, with nothing but a fan, ocean white noise, and the sound of my typing going on. Jenna is asleep, and I’m sitting in the glow of…
Ability Unlocked: Rolling Over
We knew he was getting close and that he’d likely do it just before his surgery. Leave it to our son to prove us right this one time! Over the weekend, it finally happened. A…
The Seventh Month Calm
Today marks seven months! I swear the deeper we get into this first year, the less real it feels. How is my baby boy seven months old already?! How has it already been seven months?…
Society Makes Fatherhood a Lonely Role — Especially for Dads of Disabled Kids
Being a dad to a child who has special needs is a uniquely rewarding but lonely role. There are many moments, days, or nights that, frankly, you feel you’re on an island alone. Fatherhood is…
Celebrating Tiny Movements
Super HG To watch your child’s arms laying limply at their side is its own kind of heartbreak. Something about them void of movement is just soul-crushing in a way. Everyone can’t wait for that…
Four Months Can be a Roller Coaster
Today makes four months for Mr. HG. I wish I could say that these monthly posts just come naturally, but I can’t. It seems like with each passing month, these get harder to write, not…
Learning to be a special needs dad
I admit openly that before HG, I never considered the possibility that I’d ever be a special needs dad. I’m not sure if that came from selfishness, naivety, or a combination of the two. Fact is, it never crossed…
We’re Three Months into the HG Experience
Today marks 3 months. (So you know I have to do my monthly post!) We are officially a quarter of the way through year 1. I wish I could say it has been an easy…
The Sweet Milestone of Shots
We have had many milestones with HG in these last 11-plus weeks. First casts, last casts. First splints, first AFOs, and first arms movements. With all those milestones, unique to HG, it’s nice to have…
Pool Time it is!
We’re entering summertime, which means pool time! My brother-in-law recently opened his pool up for the season, and like any good nephew, HG tried it out as soon as he could! Thankfully, HG is proving…
Celebrating Wrinkles
Who knew wrinkles would be such a welcomed sight?! Wrinkles that we all have, that you never think about, like on your elbows, fingers, wrists, and knees, HG has never had. HG has been missing…