
This is a picture I took at the beach last month.
When I took it, I had several ideas running through my mind. Harrison and Jenna were near the ocean in the background. My cup, with the Dadvocate sticker on it, was sitting in the foreground.
I thought maybe I’d use it to talk about the sticker.
Maybe about the shirts.
Maybe about what being a Dadvocate actually means to me.
The beach has always been one of those places where I think more than usual. Where emotional walls come down. It seemed like the right kind of picture for that.
Unbeknownst to me, sitting just outside the frame were two people who would completely change what this picture means.
When I took this photo, life was one way.
By the time we walked off the beach a few minutes later, it was something else entirely.
An inevitability finally occurred.
We had just spent one of the best afternoons we’ve ever had on the beach.
Harrison had been walking barefoot through the sand.
Standing at the edge of the ocean.
Watching the waves roll over his feet.
Laughing.
He was happy.
We were happy.
Eventually it was time to head back toward the house. Harrison was ready to get back to the pool. By that point in the vacation, the kid was practically waterlogged from spending every chance he could in the water.
I threw him up on my shoulders and started back toward our stuff.
As I was getting him down, I overheard someone mention smoking and drinking during pregnancy.
It didn’t register.
I honestly thought they were talking about people in general.
I noticed the look on Jenna’s face, and she was staring a hole behind me, in the direction the two were sitting, but I was busy getting Harrison down, grabbing our things, and getting ready to leave.
About halfway back up the beach, I could tell she was upset.
That’s when Jenna told me everything.
It had been a father and son who were sitting nearby.
“I would want my son to play basketball, golf, and baseball…oh, he is f***ed up. That’s sad.”
“You know what causes that? Drugs and alcohol. Yeah, drugs and alcohol…or maybe just bad luck.”
I only heard the drugs and alcohol part.
Jenna heard every word.
We experienced the same moment in two completely different ways.
Every ounce of me wanted to turn around.
Every ounce of me wanted to walk back down that beach and beat that kid senseless.
I know exactly how that sounds.
Some people will think less of me for admitting it.
Some people will think less of me because I didn’t actually do it.
The truth?
I’m still not sure how I feel about either one.
I’m glad I didn’t.
I also still wish I had.
Both of those things somehow exist at the same time.
This isn’t a sympathy post.
I don’t want anyone feeling sorry for us.
I’m also not naïve enough to think this was the first time someone has looked at Harrison and made assumptions.
People stare.
People whisper.
People judge.
Some people blamed me before we ever left the hospital.
I’ve seen the looks.
I’ve felt them.
This wasn’t new because someone judged my son.
It was new because someone looked directly at him, decided he knew everything there was to know about him, blamed my wife, and said it out loud without a second thought.
He knew nothing about Harrison.
Nothing about Jenna.
Nothing about me.
Nothing about Arthrogryposis Multiplex Congenita (AMC).
Nothing about Nemaline Myopathy.
Nothing about genetics.
Nothing about surgeries.
Nothing about casts.
Nothing about braces.
Nothing about therapy.
Nothing about the thousands of tiny victories that little boy has fought for over the last five years.
He saw someone who looked different.
That was enough.
He filled in the rest with ignorance.
What he didn’t see.
He didn’t see the happiest I’ve ever seen Harrison on a beach.
He didn’t see the little boy who wanted nothing more than to keep walking toward the ocean.
He didn’t see the kid who laughed every time the waves rolled over his feet.
He didn’t see the child who had probably put more effort into learning how to walk than that guy has put into anything in his entire life.
He didn’t see Harrison.
He saw something different.
He decided different meant damaged.
That’s on him.
Not on my son.
I have replayed that moment over and over.
What if I’d heard everything?
What if I’d turned around immediately?
What if I’d walked back down there?
What if I’d said exactly the right thing?
Would it have mattered?
Honestly? Probably not.
People who casually say something like that about a child usually aren’t waiting for someone to educate them.
They aren’t looking to learn.
They aren’t looking to understand.
Violence wouldn’t have changed them.
My words probably wouldn’t have either.
That doesn’t make walking away feel any better.
Later that evening, I went back down to the beach by myself.
I used collecting sand as an excuse.
Reality?
I just needed to be alone.
They were still sitting there.
I paced back and forth maybe twenty yards away.
Fists clenched.
Trying to decide whether today was going to become a completely different kind of story.
I didn’t go over.
I didn’t say anything.
I walked away again.
I still don’t know if that was strength…
or restraint…
or cowardice…
or wisdom.
Maybe it was some ugly combination of all four.
I don’t know.
I just know that this has sat with me every single day since.
People have underestimated Harrison his entire life.
I’m sure many always will.
They’re cheating themselves.
Because Harrison is an incredible little boy.
He has fought through things most people can’t even imagine.
He has worked harder to learn how to walk than many people will ever work at anything.
Maybe he’ll never play basketball.
Maybe he won’t play golf.
Maybe there are things he’ll never do.
So what?
His value isn’t determined by a damn checklist of things someone else thinks a boy should accomplish.
It’s determined by who he is.
And who he is is pretty incredible.
I don’t know how I’ll respond the next time something like this happens.
Because there’s no question, there will be a next time.
I’d love to tell you I’ll calmly educate someone.
I’d love to tell you I’ll use it as an opportunity to advocate.
Reality is, the people saying those things usually aren’t looking for a conversation.
They’re looking for confirmation of what they already believe.
I can’t change the minds of people in my own community.
I’m sure as hell not going to change the mind of some random idiot on a beach.
What I can do is keep showing people who Harrison really is.
Keep telling his story.
Keep refusing to let people like that become louder than he is.
That photograph isn’t the Dadvocate picture I thought I was taking anymore.
Now, every time I look at it, I think about what was happening just outside the frame.
But I also see Harrison.
I see Jenna.
I see a little boy who had just experienced one of the best moments of his life.
Two ignorant people don’t get to take that away.
They don’t get to rewrite that memory.
They don’t get to become the center of the picture.
Harrison does.
He always will.
And to the ignorance…
To the assumptions…
To every person who decides my son’s worth before they’ve taken five seconds to know him…
You will not break me.