Greenville, SC. I can’t say I ever considered Greenville a place to visit, but now it feels like we were always destined to. Once we wrapped our heads around our new conditions and situation with…
The Constant That is BattleBots
Exactly 4 weeks ago, we were in the hospital room at UK Children’s Hospital, the weight of our new reality still sinking in, our son in the NICU, admittedly numb to the world, with BattleBots…
Welcome to Holland – A Parents Perspective
Navigating these unknown waters has been interesting. My wife came across this essay by longtime Sesame Street writer Emily Perl Kingsley, who has been an advocate for people with disabilities since her son Jason was…
Lexington Shriners Hospital – The Good, The Bad, The Infuriating
We made our second visit to Shriner’s Children’s Hospital in Lexington, for HG’s first cast change, along with his first set of splints on his hands/wrists. Not only that, we had our first official bath!…
Lets Talk About Serial Casting
Serial casting is a procedure that is geared to help improve a patient’s range of movement in a joint that can’t be flexed or extended, potentially caused because the muscle connected to a joint is…
AMC and Me
As we continue to research and learn about AMC, I’m going to share things we come across here on the blog. Not just for people to be able to find and use as a resource,…
On Your Left
Going back to the week we spent at the UK Children’s Hospital when the perfect gift with the perfect quote came into the NICU. We had already been at the NICU for a few days,…
Shriners Hospitals for Children Medical Center – Lexington, KY
After being home for just a week, we had our first appointment with Shriners Hospital for Children Medical Center – Lexington today. We went in nervously, not knowing what to expect. We came out with…
The Last Day in the NICU
When your wife is a photographer, you’re guaranteed some amazing photos, and memories captured. While memories of being in the NICU may not be of the most cheerful kind, they do mark a few milestones….
The Ultimate Nanny Dog
Penny the Shar-Pei is 3 years old. She’s normally a lazy, spoiled, wrinkly pup. When we found out we were expecting, my wife and I would talk about how we expected Penny to be once…
The Hardest Question
The hardest question so far to answer hasn’t been about my son, or what the doctors are saying, or even how I’m doing. The hardest question to answer has been when someone asks how my…
The Day When Life Took a Left Turn
The day our son was born, started out like any other. We woke up; we packed up our stuff, and we headed out. Having a scheduled c-section meant it took the guesswork out of the…