I originally posted this on my Instagram feed. You can find the original poster below. After sitting and thinking about it, I felt it deserved a blog post here on the site as well. As…
The Slow Progress of Independence
A quick look behind the curtain… Harrison has accomplished many things in his first year. He has made countless strides through his work and therapies. One thing he has been unable to do under his…
A First-Year Guide for Arthrogryposis Parents
When our son was born with Arthrogryposis, we were blindsided. No prenatal clues, no preparation, just shock and chaos in the NICU. One year later, I want to share what I’ve learned in hopes it…
The Scars of a Year Ago
Thursday, March 4, 2021, at 1:05 PM I felt the coldest, soul-draining fear I have ever felt. Excitement and joy were replaced with panic and dread. Not exactly the words you want to use to…
Finding Normal When Things Are No Longer Typical
Today is Harrison’s birthday. That is still crazy for me to think about. Not just because time has flown by and how on Earth could my baby boy already be 1, but because we’ve gone…
To My Birthday Boy!
Happy Birthday! I can’t even begin to count the ways how weird that feels to say. You’re officially 1. How did that happen?! I realize that’s something most parents are going to say. Time flies…
A Year of Reflecting on People
So, our little boy is about to turn one. Thinking back on March of last year, I didn’t know for the longest time if we would even be sitting here where we are right now….
Rare Disease Day
Today is Rare Disease Day. Observed yearly, on the last day of February. To help raise awareness for rare diseases and to improve access to treatment and medical representation for individuals with rare diseases and…
11 Months and a Rolling Return
Hello 11 months! We’re 28 days away from Mr. Harrison Greene’s first birthday. Making this the penultimate post of year 1. You’d think this would be a calmer post. A calm before the storm-type post…
A Quiet Detour to Poinsett Bridge
It has been a minute since we went on any type of adventure, so after the heaviness of the third and final day of our latest visit to Shriners Children’s Greenville, we took a tiny…
A Return to Falls Park on the Reedy
We finally found time to make it back to Falls Park in Greenville this past visit. Back in April, on our second trip to Greenville, I finished the Greenville post, saying I couldn’t wait for…
Greene Does Greenville X: The Next Chapter
This latest trip to Greenville marked our 10th trip. 10 visits to the Shriners Children’s Greenville. Over 6,000 miles driven. I don’t recall what I was thinking or what I was expecting when we made…