Our second AMC Awareness Day has come and gone. Another emotional day for us. I’m sure one day I’ll be able to pinpoint it better, to put into elegant words the wave of emotions that…
Posts tagged Arthrogryposis
Greene Does Greenville – Year 2 – The Beginning
January 14th was the last time we were in Greenville, SC for a visit to Shriners Children’s. Despite having over 3 months between visits, and loads of changes and growth, we went into this latest…
Rare Disease Day
Today is Rare Disease Day. Observed yearly, on the last day of February. To help raise awareness for rare diseases and to improve access to treatment and medical representation for individuals with rare diseases and…
11 Months and a Rolling Return
Hello 11 months! We’re 28 days away from Mr. Harrison Greene’s first birthday. Making this the penultimate post of year 1. You’d think this would be a calmer post. A calm before the storm-type post…
Greene Does Greenville X: The Next Chapter
This latest trip to Greenville marked our 10th trip. 10 visits to the Shriners Children’s Greenville. Over 6,000 miles driven. I don’t recall what I was thinking or what I was expecting when we made…
Greene Does Greenville VIIII: The Boy with the Green Casts
Another visit to Greenville, SC is in the books. Another new set of casts covers our baby boy’s legs, and I come away yet again, thankful for all the doctors and staff at Shriners Hospital,…
Greene Does Greenville VIII: Hip to be Square – Pt 2
Surgery Day! Leave it to our son to ensure we have a rollercoaster of a day. Even on surgery day. When our day started today, we thought our timetable looked like this: 6 am –…
Greene Does Greenville VIII: Hip to be Square – Pt1
Pre-op day! It’s been hard to know what to say on here for everything going on today and tomorrow. I’ve tried thinking about it ahead of time. To attempt at gaining some reverence of coherent…
Ability Unlocked: Rolling Over
We knew he was getting close and that he’d likely do it just before his surgery. Leave it to our son to prove us right this one time! Over the weekend, it finally happened. A…
Greene Does Greenville VII: Harrison Returns
We made our seventh visit to Shriners Hospital in Greenville, SC at the end of last week. It was our first time back seeing Dr. Hyer, Phil, and all the rest since the middle of…
Revisiting Lexington Shriners Hospital
While I won’t name names, a certain little boy just won’t quit growing! Not only is he outgrowing clothes at a faster pace than we had ever anticipated, but he is also outgrowing his orthotics…
To My Six-Month-Old Son
Happy six months, son! And with that said, that’s all I have come up with to write to you prior to sitting down. It’s crazy to think about, and hard to believe that six months…